I now have a second course of the new drug regimen under my belt.
The not so good:
- Neuropathy (tingling in appendages) is showing itself
- More fatigue, but for a shorter period, than under the old regimen (could fall under either category)
- Tender gums
- Some weird post-infusion fever thing that is curious
The good:
- None of this so far, which is pretty remarkable
- Shorter infusion sessions (just one hour)
- No cold sensitivity
The lack of nausea is huge. It means I can eat and move about and ride in a car without feeling sick. And it might mean I can take less anti-nausea medicine, which has its own unpleasant side effects. This may trump everything else right now. I’m hoping the neuropathy doesn’t emerge too strongly since that is something that can persist past treatment.
Next up: an important CT scan on the 28th that will show whether the treatment is making progress. I’m am embracing positive thoughts about that. But expect a sleepless night or two heading into that day.
5 replies on “Keep on the sunny side”
I’m right there with you with scanxiety. Sending hugs and positive thoughts. Love the photo. I want one next time we visit.
Will do!
Michael, it’s good that you’re not having the sick, sick, sick. The non-nausea must be a huge relief. It’s just good that your reactions to this second course sound more manageable. I’ll be sending good thoughts your way on 10/28 and hoping you learn that the treatment is annihilating that thing into oblivion.
Thanks, Jenny.
How did the CT scan go? Update please!